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A project led by The Kids Research Institute Australia’s child disability team will seek to reduce potentially preventable hospitalisations and build health literacy for children and young people with intellectual disability.
Developmental and epileptic encephalopathy (DEE) conditions are rare, and most have a genetic cause.
This study describes how an informed consent process was developed for people with intellectual disability and how it is working in a current study
People with two or more copies of MECP2 gene, located at Xq28, share clinical features and a distinct facial phenotype called MECP2 Duplication syndrome.
The aim was to assess the feasibility of assessing diet with an image-based mobile food record application in 51 adolescents and young adults with Down syndrome.
A new study has found children with disabilities are 3 times more likely to be maltreated compared to other children but that risk varies by type of disability.
Explored Youth with Neuromuscular Disorders perceptions of health, health behaviors and healthcare engagement
Synthesized findings demonstrate that people with intellectual disability, who live in community or residential settings, may fall more frequently, and at a younger age
We aimed to review original research which described factors impacting the health of primary care-givers of children with Autism or Intellectual Disability
Our vision is to increase awareness and improve outcomes for children with movement disorders and other neurodevelopmental conditions impacting on motor function.