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In order to help doctors and families reduce the risk of fractures, we developed clinical guidelines for managing bone health in Rett syndrome.

These resources include the best available evidence about the course of Rett syndrome and its management as well as practical information about family associations, specialist clinical centres and links to relevant websites.

Our Searchable online database allows you to create graphs like the one below.

Embrace the potential of children with Rett Syndrome by exploring how to plan opportunities for uptime, maximizing their engagement and participation in meaningful activities.

Our research team have done 4 studies to find out how to increase activity in children and adults with Rett syndrome.

AussieRett is the Australian Rett syndrome research study. We collect information on Australian individuals with Rett syndrome from both families and clinicians

Research

Impact for Tourette’s is Australia’s first national project evaluating the unmet needs of people with Tourette syndrome and other tic conditions.

News & Events

Impact for Tourette's, the first survey of its kind in Australia provides comprehensive national data on the daily challenges faced by children and adults living with tic-related disorders like Tourette syndrome

News & Events

With the school year now well underway, it’s not uncommon for kids to start feeling the stress of assignments, homework and extracurricular activities.

News & Events

Australia’s first comprehensive research centre focused on mental health from birth to 25 years has been launched today in Perth.