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Barriers and Considerations for Diagnosing Rare Diseases in Indigenous PopulationsAdvances in omics and specifically genomic technologies are increasingly transforming rare disease diagnosis. However, the benefits of these advances are disproportionately experienced within and between populations, with Indigenous populations frequently experiencing diagnostic and therapeutic inequities. The International Rare Disease Research Consortium (IRDiRC) multi-stakeholder partnership has been advancing toward the vision of all people living with a rare disease receiving an accurate diagnosis, care, and available therapy within 1 year of coming to medical attention. In order to further progress toward this vision, IRDiRC has created a taskforce to explore the access barriers to diagnosis of rare genetic diseases faced by Indigenous peoples, with a view of developing recommendations to overcome them.
Research
What we know about suicide prevention for Aboriginal and Torres Strait Islander peoplesThis fact sheet addresses what we currently know about suicide prevention for Aboriginal and Torres Strait Islander peoples.
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Interpretation of recent sudden infant death syndrome rates in Western AustraliaData for recent years show a shift away from a classification of 'SIDS' towards a classification of 'unascertainable', particularly for Aboriginal infants.
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Disparity in Mortality From Rheumatic Heart Disease in Indigenous AustraliansThis study was undertaken to provide a comprehensive examination of rheumatic heart disease mortality rates and trends in Indigenous Australians.
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Reduced forced vital capacity in Aboriginal Australians: Biology or missing evidence?This editorial article addresses chronic obstructive pulmonary disease and lung function testing in Aboriginal Australians.
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The Differential Influence of Contextual Risks on Psychosocial Functioning and Participation of Australian Aboriginal YouthMethodological issues and implications for interventions to support young Aboriginal people's adaptation are discussed.
Research
The Second Research Report: patterns and trends in mortality of Western Australian infants, children and young people 2004-2005This report was commissioned by the Department for Child Protection as an ongoing initiative to continue the work initiated by researchers at the Telethon Kids
News & Events
Prestigious invite for WA infectious disease expertsTwo Perth clinician-scientists have been recognised as national leaders in infectious disease research after being elected as Fellows of the esteemed Australian Academy of Health and Medical Sciences.
News & Events
Prestigious national award for researcher seeking to improve Indigenous cancer outcomesCongratulations to Indigenous genomics researcher Dr Justine Clark, who is one of two scientists nationally to receive the Australian Academy of Science’s 2024 Aboriginal and Torres Strait Islander Science Award.
News & Events
Aboriginal-led survey to better understand the mental health of young Aboriginal LGBTQA+ peopleA project, lead by Aboriginal and Aboriginal LGBTQA+ researchers examining the mental health of young Aboriginal and Torres Strait Islander LGBTQA+ people, is launching a nation-wide survey, to help drive meaningful change for the community.