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A severity assessment was rapidly developed with input from multiple stakeholders. Refinement through ongoing validation is required for future clinical trials.
This study explored facilitators and barriers to "uptime" (non-sedentary) activities in Danish girls and women with Rett syndrome
The IDEA system is a valuable resource to address the needs of people living with intellectual disability
MECP2 duplication syndrome is a rare but important diagnosis in children because of the burden of respiratory illness and recurrence risk
People with intellectual disability fall at a younger age compared with the broader community
The clinical understanding of the CDKL5 disorder remains limited, with most information being derived from small patient groups seen at individual centres.
Nonrecurrent risk of stillbirth, Preterm birth, and small for gestational age after exposure to one or more of these complications in a previous pregnancy
Intellectual disability affects more than 1.5% of the population of children in developing countries yet we know little about the daily lives and support...
Synthesized findings demonstrate that people with intellectual disability, who live in community or residential settings, may fall more frequently, and at a younger age
Data linkage is the bringing together of specific datasets from different sources using demographic information on individuals within a population.