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Outcomes and endpoints reported in studies of pulmonary exacerbations in people with cystic fibrosis: A systematic review

There is no consensus about which outcomes should be evaluated in studies of pulmonary exacerbations in people with cystic fibrosis (CF). Outcomes used for evaluation should be meaningful; that is, they should capture how people feel, function or survive and be acknowledged as important to people with CF, or should be reliable surrogates of those outcomes. We aimed to summarise the outcomes and corresponding endpoints which have been reported in studies of pulmonary exacerbations, and to identify those which are most likely to be meaningful.

Driving change for children with disability

Today marks International Day of People with Disability (IDPwD), a United Nations initiative that encourages communities around the world to deepen their awareness, understanding and acceptance of people with disability.

Study sheds new light on the ‘autism epidemic’ mystery

Researchers have shown that the so called 'autism epidemic' is due to an increase in the diagnosis of children with less severe behavioural symptoms.

Making FASD History in the Pilbara: celebrating International FASD Awareness Day

To mark International FASD Awareness Day, The Kids will launch a series of health promotion videos that feature local Aboriginal community members.

The Kids researcher awarded support funding

A The Kids Research Institute Australia researcher has been awarded $10,000 in State Government research support funding.

New study shows alcohol use ‘common’ during pregnancy

The Kids Research Institute Australia's Professor Carol Bower is not surprised by new research that shows alcohol use in pregnancy is 'common'.

Young Minds Matter

Young Minds Matter is the second Australian Child and Adolescent Survey of Mental Health and Wellbeing.

Landmark youth mental health survey released

Researchers at The Kids Research Institute Australia hope data obtained from the 2nd Australian wide survey of child and adolescent mental health will help government

RSV: The Hidden Virus

Despite respiratory syncytial virus (RSV) being the leading cause of hospitalisations in the first year of life, there is currently no routine preventative option for otherwise healthy babies.

Free vaccines for pregnant mums see monumental rise in protection for WA babies

New collaborative research involving almost 600,000 pregnant mothers has demonstrated a dramatic increase in uptake of the whooping cough (pertussis) vaccine after identifying just 22 per cent of WA women had the maternal vaccination between 2012 – 2017.